I was reading this article on the website listed below from The Dystonia Society in the UK.
http://www.ipsen.co.uk/linke.php?name=The%20Dystonia%20Society,%20UK&url=http://www.dystonia.org.uk/
Will my dystonia improve or get worse?
In many cases, if dystonia develops in childhood, particularly if it starts in the legs, it may spread to other parts of the body, and can become generalized. However, when it develops in adults, it usually confines itself to one part of the body (focal dystonia). If it spreads at all - which is unlikely - it will usually affect only one other area, usually in the nearest muscle group.
The progress of dystonia is unpredictable. The severity of symptoms can vary from day to day, and while there often is an element of overall progression, it is difficult to estimate how long this will last. Typically, a focal dystonia will progress very gradually over a five-year period, and then progress no further. Symptoms in all dystonic conditions can vary.
For some people, their dystonia may sometimes improve or disappear altogether for no apparent reason. The likelihood of a total remission of symptoms has been estimated as somewhere between one-in-ten and one-in-twenty. In some cases, the dystonia may eventually return, but in others it will disappear completely.
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This is my diary of my journey with Dystonia. I help others who have Dystonia, or are caregivers to someone with Dystonia. I'm a Certified Professional Coach, who coaches clients in areas of Life and Relationships. I also coach, both caretakers for people with Dystonia, and people with Dystonia, who are in desperate need for emotional support. Coaching can be conducted over the phone, in the comfort of your own home. Contact me for appointments and fees, don't go through my website.
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