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Saturday, June 7, 2014

Essential Oils and Dystonia

I was asked if I knew anything about the effects essential oils have on Dystonia, and I honestly have to say that I never even thought of how the oils would have an effect on our muscles, when it comes to relieving any cramping or pain. If anyone has any information, please comment or email me!!!!

Rachel Burrow reached out to me about the struggles her father is going through with his Dystonia, amongst other health issues. Rachel is a distributor for Living Young Essential Oils and is interested to see if the oils can give her father any relief. Conversing back and forth, we did find some sites that gave us the names of some oils that can give some relief. I have not used or witnessed any healing or relief of muscle pain with Dystonia, so please know that I'm just passing on information for anyone else who may be interested in trying the essential oils on themselves or on a loved one suffer ending with Dystonia. I have become extremely interested and want to research more on this subject.

Here's what we've found....

Marjoram- Muscle-soothing properties help relive body and joint discomfort. May also help soothe the digestive tract and is a general relaxant.  Antibacerial, anti fungal, vasodilator, lowers blood pressure, promotes intestinal peristalsis, expectorant, mucolytic.  Assists in calming nerves.

Basil- Powerful antispasmodic, antiviral, antibacterial, anti-inflammatory, muscle relaxant

Helichrysum-Anticoagulant, anesthetic, antispasmodic, antiviral, liver protectant/detoxifer/stimulant, chelates chemicals and toxins, regenerates nerves

Cypress-Anti-infectious, antiviral, aphordisiac, anthelmintic, calmative (I personally don't think this one would help as much.)

Gratitude- This is a blend (Balsam Fir, Frankincense, Myrrh, Galbanum, Ylang Ylang, Rosewood). Gives feelings of being grounded and strengthened.

Oregano- Antiagin, powerful antiviral, antibacterial, anti fungal, anti parasitic, anti-inflammatory, immune stimulant

Sunday, June 1, 2014

Wednesday, May 28, 2014

September Is Now Dystonia Awareness Month?

June used to be Dystonia Awareness month, but it has recently been changed to September. Why? I have no idea!

Below is a photo of the email I received of the notification of the change from DMRF. The other photo is my email I sent them to confirm it.







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Wednesday, April 30, 2014

Appreciating Life With Dystonia

Looking back, I can't believe all that I did before I received my Botox treatments 6 years ago...before I even knew I had Dystonia. I sometimes glance at photos and cringe as I focus on how tilted my head was. I can actually feel the pain I was in, as if it was just yesterday. What still baffles me is that not many people noticed the odd positions my neck was in. They tell me that they only knew I was in pain because my hand was always touching my neck and rubbing my neck all the time. All you Dystonians know the miracle of that "sensory trick". I still find it so amazing how that with one slight touch of my hand I can calm my muscles...well, at least for moments at a time.

Dystonia is a horrific disease that causes physical, mental and emotional pain. I want nothing more than a cure to be found, just like all of you do. There are moments I try to think of all the trauma that I've been through in my life...bumping my head, falling off a horse, car accident, etc...trying to come up of reasons why or how this could have happened to me. Then I stop and think of the little ones who developed Dystonia, who hadn't had the chance for any traumatic injuries to happen to them, why did Dystonia happen to them? I become exhausted thinking of reasons why and trying to research everything that was posted on the internet from doctors, hospitals, and clinics.

So, what do I do on a daily basis? I appreciate the life that I have. I appreciate waking up in the morning, hearing my husbands and son's voices, and having my cup of coffee.  I've learned to adjust or eliminate the people or activities that are not working for me anymore, and have learned to bring peace and joy into my life. I appreciate things that I see (faces of family, friends, blue sunny skies, and bright colors of flowers) and don't worry about the things that I can't do (certain yoga poses, lifting weights/heavy objects). I also make it a habit to push myself to do anything or everything on the days/weeks I'm feeling really good. On the days I'm not feeling too well or I'm extremely tired, I've learned to use those moments for reading or meditating.

What things do you do to make your days more comfortable, happier or exciting?

Thursday, March 27, 2014

Something New Happening

A couple of months ago, while propping my head up on my pillows and watching television in bed, the muscles in the front side of my neck spammed! It was such an uncomfortable feeling, like someone was literally squeezing my neck, but not painful. As soon as I lifted my neck up and grabbed it with my hand, the spasms stopped!!!!

Some time later I was lying in bed and gave a long stretch, my head was tucked towards my chest, and the same exact thing happened. I immediately stopped, pulled my head straight up and grabbed it with my hand...and the spasm stopped.

Being conscious that this happened when I stretch or move my neck towards my chest to tight, I haven't had any spasms.  Until last night. My head was propped up on my pillows, watching television in bed, and my neck spammed so badly that I was actually in tears afterwards.  Not from the pain, but wondering why this is happening.  I wasn't stretching at all this time. This spasm was so bad that I can actually feel the muscle press against my throat. Again, not painful, just uncomfortable.

This morning the muscles in the front my neck are very sore.  I'm going to stretch and do yoga and meditation this morning.

Has anyone else had this experience, I never had the muscles in the front of my neck spasm in all the years I've had cervical dystonia.  I only get pulls from muscles on the sides of my neck and twitches.

Friday, March 21, 2014

Fusion Academy Health Fair Event

I met wonderful people last night who are all into health awareness!













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